Category Archive: Biobanking

Nov 06

We Face a New “Tragedy of the Commons.” The Remedy is Better Metadata.

By Mark A. Musen, M.D., Ph.D. The data science community is awash with “FAIRness.” In the past few years, there has been an emerging consensus that scientific data should be archived in open repositories, and that the data should be Findable, Accessible, Interoperable, and Reusable.1 The campaign for FAIR data is particularly palpable at the …

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Permanent link to this article: https://ncip.nci.nih.gov/blog/face-new-tragedy-commons-remedy-better-metadata/

Sep 14

The Protein Data Bank and the Importance of Sustaining Primary Data Archives

                    By Helen M. Berman, Ph.D.*, Director Emerita, RCSB Protein Data Bank, and Stephen K. Burley, M.D., D.Phil.*+, Director, RCSB Protein Data Bank Scientific discovery involves collecting and analyzing data, and communicating new knowledge arising therefrom. What happens, though, when someone wants to repeat an experiment, or …

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Permanent link to this article: https://ncip.nci.nih.gov/blog/protein-data-bank-importance-sustaining-primary-data-archives/

Apr 05

Missing pieces for a cancer-focused learning healthcare system

We are in a time of transformation in cancer informatics. Many years of work to make The Cancer Genome Atlas (TCGA) data more widely available through Cloud Pilot implementations will come to fruition in the next few months. At the same time new programs, such as the National Cancer Moonshot and the Personalized Medicine Initiative, …

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Permanent link to this article: https://ncip.nci.nih.gov/blog/critical-missing-pieces-for-a-cancer-focused-learning-healthcare-system/